Hospice (5/25/2017)
I
had a care team meeting scheduled at Greystone this morning. Keri's
screaming has created problems here and they gave three alternative care
options. 1. A new drug for pseudobulbar palsy that will hopefully deal
with the symptoms ($750 per month), 2. a dementia care facility, or 3.
Hospice. I was not prepared for hospice and couldn't help crying. I
think we will go with hospice because that then covers the drug costs.
I'm glad Alesa was here and I wish Ian had been here to hear the
discussion. I'm scheduling a meeting with the Greystone hospice man and
I'll make sure Ian is at that. No kid should have to go through what Ian
has had to deal with during the last 5 years. I'm convinced that this
has led to his behavior.
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